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Lizzie Velasquez

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About Lizzie

Syndrome Info The syndrome that I am living with is so rare that it is to this day undiagnosed. There are only 3 people in the world including myself who have it. Amanda, the oldest of the three is in her 30's and lives with her husband Richard in England. Abigail the youngest is 15 and lives in Austin as well. I've seen many different research doctors throughout my life and there just aren't any answers. The main symptom of the syndrome is that I'm not able to gain weight. I'm 21 years old right now and only weigh about 60 lbs. I have zero percent body fat as well. I'm also blind in one eye and have limited vision in the other.I eat whatever I want all day long and just can't keep the pounds on. The syndrome is so puzzlng because it fits characteristics of different syndromes but doesn't fit it to the point where I can be diagnosed with a certain one. For example, one of the big ones is progeria. I have a lot of the same physical features as kids with progeria. Like the pointed nose, small mouth, and appearing with aging skin. The difference is that progeria is terminal and has a lot more complications. The small amount of information that I just wrote about is literally the only information my doctors know about my syndrome. It's just one big mystery and hopefully one day there will be a miracle and an answer to all our questions.
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Family Info My ParentsMy parents are my world and I look up to them more and more everday. They are without a doubt my biggest heros. They will do anything for my family at the drop of a hat. My parents have taught me so much in life, to never give up on my dreams and to always reach for the stars. I hope to one day be the amazing mom just like mine. My dad is so funny and always knows exactly what to say to make me laugh. I love them both more than words can say.My Sister MarinaMy little sister Marina is 16 and I love her to death! Even though she is younger than me she is already taller than me and always says she is the older one! She is a very good athlete and is also in the band. Her and my little brother are both very protective of me, especially when we are in public. They don't like it when people stare at me. I love the random things she says sometimes and now that she is getting older we have more in common. I keep telling her to follow in my footsteps and become a cheerleader and she looks at me like I'm crazy! She wants to do her own thing! hahaMy Brother ChrisI just got to say I love my brother! I can just sit and have a conversation with him about anything in the world and I can just sit there and laugh at the random things he has to say! It's so exciting watching him grow up and learning more about his personality. He has such a good outlook on life and is always looking to make any situation fun!

Lizzies New Book

Lizzie Beautiful: The Lizzie Velasquez Story
Stop staring and start learning!Lizzie Velásquez opens her soul and shares her remarkable story, giving us an inspiringtestimony. She reveals intimate details about her struggles living in a society that places great emphasis on outer appearance. Also read never-before-seen journal entries Lizzie's mother wrote to Lizzie as a child. Lizzie gives you reasons to find hope and faith that can be infused into everything you do, so that you - too - can achieve your dreams. This book, whether read by an individual or shared as a group, becomes a tool to discover that beauty is unique to each of us.Available now at AmazonTo order click here$19.95, full colorAvailable now in Spanish at AmazonLizzie BellísimaLa historia de Lizzie VelásquezTo order click here.

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speaking Powerful - Relatable Do you feel you're unable to follow your dreams?Do you take negativity and criticism to heart?Does that negativity prevent you from moving forward in your life?Have you set goals? If so, have you accomplished any of them?Do you need to get motivated? Let Lizzie Velasquez inspire you! Lizzie details her life experience living with a rare syndrome that does not allow her to gain weight. Hear about the negativity, teasing and bullying she encounters on a daily basis, and how she deals with it. Despite a lifetime of difficulties both emotionally and physically, Lizzie accomplished all of her dreams by the age of 21. You can do it too! Book Lizzie now for a speaking engagement.Contact Lizzie at lizziebeautiful_yahoo.com

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A Day in the Life

testimonials Lizzie's message of tolerance/acceptance was outstanding. It was incredible to witness the reactions of the audience, there was silence, tears, and laughter - the group was truly moved. I was most amazed by the conversations that aspired after the presentation, students talked to one another and shared their stories; they lined up, one by one to talk to Lizzie and tell her how her words were healing. Lizzie is a rare find, she is exceptional and extraordinary - warm and caring, and beautiful - inside and out. Thanks for the wonderful experience. Mary Jo Garcia Biggs, Ph.D., LCSWAssociate Professor and MSW Distance Education CoordinatorSchool of Social WorkTexas State University - San Marcos Lizzie is such an inspiration. Her story has given me hope thatI can accomplish anything no matter what obstacle is put in my path.Lizzie has this amazing presence; you can't help but feel uplifted andready to take on life when you hear her speak. Even though I don't share Lizzie's syndrome, I was still able to relate to some of theinner and outer conflict she's dealt with. Hearing how Lizzie's overcome challenges has given me ideas I can apply in my own life. TeresaTexas State University - San Marcos

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Hello 2012!

Pet Peeves

Hollywoods Calling my Name!

Hair Tutorial

We're Back!

Fun Buddies

Look At Me Now!

Thank You!!

Watch out world!!

It Gets Better

It Gets Better

It Gets Better: Lizzie Velasquez

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Recently Featured On:Broadcast MediaHLN, Dr.Drew NBC, Today Show 7 Network, Australia, Sunday Night RTL Network, Germany, ExplosivSyndicated, Inside EditionR7 Network, Brazil, Domingo Espectacular On-lineYouTube (5,042,637 views, and counting)AOL.comCBS.comCNN.comFOXnews.comMSNBC.comTelemundo.comUnivision.comThe Huffington PostSky NewsPrint MediaNew York Daily News Austin American Statesman Sydney Morning Herald Der Spiegel International The Daily Telegraph The Daily MailThe SunCloser Magazine, U.K.Real People Magazine, U.K. Lizzie's story has also appeared via broadcast, on-line, or print media in:China, Japan, Italy, Canada, Mexico, France, Greece, Hungary, Sweden, Norway, Ecuador, Pakistan, Vietnam, Romania, Portugal, Turkey, and Indonesia.

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Testimonials Dear Lizzie, I am pregnant right now for the first time and want to teach my future child how to respect and see beauty in everyone. For the last few weeks, I've been wondering how I'm going to do that.I think your book will help me. Your parents did an excellent job because you seem very strong and sure of yourself. Hopefully, my child will be too!-Jessica Lizzie,I am from South America where it is difficult to achieve goals.My problems are nothing compared to yours. But if you can do it, I can too.I will pray with all my heart you finally receive a proper diagnosis.You've inspired me! -Miguel Hi Lizzie,Wow, I admire your courage. You have a great attitude! It makes me feel ashamed for ever feeling sorry for myself. You really inspire me. Keep it up, Lizzie! -Emily Dear Lizzie,Just want to let you know how much I respect you. I am 21 years old and have never watched anyone my own age with as much courage and heart as yourself.Wish you the very best in the future.-Nicholas Lizzie,I am a 30 year old woman from the U.K.. You sure are a fighter and you help me fight a little more too. I'm dealing with depression and sometimes life seems too hard for me. When I read your story, I knew that I - too - have to fight. I wish the best for you and hope all your dreams come true.-Helen Dear Lizzie,You look so thankful, so happy. How do you do it?I'm so glad there are still people like you in the world.-Monika

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For all media inquiries or to book Lizzie for a speaking engagement contact Lizzie at: lizziebeautiful_yahoo.com

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